I'd keep an eye over the next 2-3 months and if you feel they aren't making progress or especially if they experience any regression, start fighting the health visitors/GP for a referral.
Its actually theorised to be multiple parts of the brain but different parts have been found in fMRIIt is in different participants. So I guess you could see dyslexia as a different phenotype cause by genetic changes leading to differing neurobiology. My issue is I have a dyspraxia diagnosis on top of the dyslexia (dyspraxia) diagnosis come first so I have no dominant hand.
When you get the decision from DLA for your younger child, if its middle rate or above then be sure to make sure carers element is added for your husband, then it'll avoid any claimant commitments for either of you again.
I didn't know he could claim carers element, will that interact with what he makes at work or do they ignore that? I know because I'm on carers allowance, that I can't earn over £151 a week. So don't know if it's the same for carers element?
It's reduced by earnings but there's no limit like carers allowance. Just to check you do have one lot of carers element on your claim already for the child already getting DLA?
Eldest is coping a bit better again this week. She has anxiety and is prone to hurting herself if she's overwhelmed. She's been really good at trying to use her loop earplugs when it's getting a bit much and she's got a chewable bracelet for when she feels the need to bite something. She's been using them both really well to keep in control.
In case you didn't know, if kids (or adults) have a diagnosis of a disability or long term illness which can including mental health conditions, you can apply for VAT exemptions for disability related things which sometimes happens to apply to chewies and sensory things on sensory toy websites. So if she needs to trial different things out it's worth looking into as it saves you some cash at least. (Someone let me know this week after spending so much on sensory things previously for our likely autistic toddler)
I'd agree: ask the people themselves. But some basic things you can do which help everyone, offer to send training materials by email beforehand so they have a chance to read things and offer to provide things in alternative formats, different fonts, coloured paper etc.
Problem I have is a lot of the time these guys aren’t particularly open about their dyslexia, meaning I don’t often know until the last minute. Was hoping for things I could possibly keep handy if the situation arises. Ta
I'd go with generally emailing all the materials to all attendees if possible beforehand, having handouts in a couple of colour options/ bigger fonts available and doing everything in at least font 12 in Arial. Try to have less to read in training materials where possible and keep things more interactive/visual.
Although I respect the right for a disabled person to feel how they want to about their own disability, if they want to call it that, no one should be telling you how to feel about your own condition. I see my dyspraxia as both a good and bad thing, but superpower is wholly inappropriate and a bit dismissive of struggles to a lot of people.
I walked 6 miles with our son in his pram today (its a total weight of about 28kg to push), my knee didn't subluxate once and the pain I have so far isn't much at all.
I’m an SLP so I’m one of those professionals who I think is doing a poor job at making this clear to parents 😅 as a parent, is there anything specific I could say or something that really got through to you?
I live in the UK, where speech therapy is incredibly minimal, so far we've gotten 2 hours where the focus is more teaching me to be his therapist (NHS might not give him more therapy for months after this) They are very upfront about my 3.5 year old son where they have said this : "we really can't predict which way he'll go, he could speak when he's older in someway or he could be a great AAC/PECs etc user but no one can tell you either way for sure". Hearing it very simply, that communication, however that is, should be the goal rather than speech was very helpful. Seeing therapy as a support, and not ever a cure or a treatment per say.
29, my friend group is people I've known from school since we were 12-16 years old, we still speak almost daily and meet once/twice a year as we all ended up in different parts of the country.
I m afraid there's no way to challenge it, they advise you have to reconfirm every 3 months and give you the date you have to do it next time in the portal. I believe our nursery has to put in a claim termly with the council with all the kids codes by a certain date, so if you miss that i'm not sure how it works to get any funding for the rest of the term. I'd advise checking with nursery ASAP, that if you reapply today you can still be covered for the rest of the summer term.
I couldn't do it until I was 13, and have a dyspraxia diagnosis. I m working on getting a second degree at the moment so not being able to crack a skill like that, never had any baring on my future. They clearly don't get what its like having a child that struggles with skills like that. I hope you managed to find some resources, but if you didn't i'd be more than happy to share what helped me/link you some things?
The UK parenting subreddit is the only one I go near now since it has some specific local things on there, our kids aren't wired for a lot of typical advice so i find it's better to avoid subreddits that believe it works for everyone.
In Scotland (unsure about specifics in rest of UK) I would absolutely go to a pharmacist first: they can give OTC medication and if they say you need to see a GP urgently then that is something you can tell the surgery
Too young for a pharmacy to give more than emollients OTC, if it needs antibiotics due to being infected or steroid cream it needs a prescription from a doctor.
I live in the UK, we had our measles herd immunity taken away by WHO years ago, because our 2 dose rate sits between 85% and 90% each year (where the idiotic Mr Wakefield who caused all this is from) . There was an outbreak in my local area this year, the case rate didn't go above 11 people and were all successfully treated/ experienced no complications, as far as I'm aware all of those infected hadn't been vaccinated . Your immunity should last your baby a year but depending on your area's rules they are usually able to give an extra vaccine sooner and provide preventative antibodies if needed.
Call your HV tommorow, they could just be a bit behind but if your child needs referrals it ll take months perhaps even into years to see someone so it's better to fight the health visitors for referrals now and not need them, than them tell you to wait and see and miss time you could have been waiting for support. If you aren't happy with what the first health visitor says, ask for a different one or speak to your GP (it took me speaking to 3 to get referrals but my gut instinct was right). Any delays they have aren't your fault, all you can really do is fight for that support as early as you can just incase. Also see if your area has a portage service, they could be really helpful with advice and even offers some visits to help.
I m doing health science so my level 3 has worked out as SD329 whilst I finished level 2, then I m doing sk320 and S390 this year and I ll do s350 last next year. I talked them into letting me do the project and defer s350 by saying the following; My project is on something that's barely mentioned in any of the modules anyway I m confident in my research skills including literacy searching through some volunteering I do, so I was already well ahead on that skill Finally I already had one level 3 30 done at pass 2 so even if the project didn't go so well I have a 2:1 almost in the bag. So they conceded and let me do it.
Won't be exactly a complete free choice but the topic isn't that restrictive so you can just pick something you are confident in already if the literature is out there. It's more if you feel ready skills wise and if you do you d hopefully be fine
I applied when he was 2.5 with suspected autism and he has a severe language delay, so of course 7 months later getting the form again and he doesn't have his autism diagnosis still.
Neither of mine were diagnosed when they were awarded the first time round and my son wasn’t even diagnosed by the second time round .. it’s crazy how long these things can take . My daughter was awarded 2 years without diagnosis at 4 and once she had the diagnosis by the time we renewed she was handed the 5 years . Hopefully you’ll get a longer award this time 🙏🏻🩷
I'd keep an eye over the next 2-3 months and if you feel they aren't making progress or especially if they experience any regression, start fighting the health visitors/GP for a referral.
Its actually theorised to be multiple parts of the brain but different parts have been found in fMRIIt is in different participants. So I guess you could see dyslexia as a different phenotype cause by genetic changes leading to differing neurobiology. My issue is I have a dyspraxia diagnosis on top of the dyslexia (dyspraxia) diagnosis come first so I have no dominant hand.
A magi can tin opener, it's impossible to hold too tight and do any harm with it.
When you get the decision from DLA for your younger child, if its middle rate or above then be sure to make sure carers element is added for your husband, then it'll avoid any claimant commitments for either of you again.
I didn't know he could claim carers element, will that interact with what he makes at work or do they ignore that? I know because I'm on carers allowance, that I can't earn over £151 a week. So don't know if it's the same for carers element?
It's reduced by earnings but there's no limit like carers allowance. Just to check you do have one lot of carers element on your claim already for the child already getting DLA?
its nothing to be concerned about, their all boosters so it's no loss of efficacy it's to add to it over time.
Eldest is coping a bit better again this week. She has anxiety and is prone to hurting herself if she's overwhelmed. She's been really good at trying to use her loop earplugs when it's getting a bit much and she's got a chewable bracelet for when she feels the need to bite something. She's been using them both really well to keep in control.
In case you didn't know, if kids (or adults) have a diagnosis of a disability or long term illness which can including mental health conditions, you can apply for VAT exemptions for disability related things which sometimes happens to apply to chewies and sensory things on sensory toy websites. So if she needs to trial different things out it's worth looking into as it saves you some cash at least. (Someone let me know this week after spending so much on sensory things previously for our likely autistic toddler)
I'd agree: ask the people themselves. But some basic things you can do which help everyone, offer to send training materials by email beforehand so they have a chance to read things and offer to provide things in alternative formats, different fonts, coloured paper etc.
Problem I have is a lot of the time these guys aren’t particularly open about their dyslexia, meaning I don’t often know until the last minute. Was hoping for things I could possibly keep handy if the situation arises. Ta
I'd go with generally emailing all the materials to all attendees if possible beforehand, having handouts in a couple of colour options/ bigger fonts available and doing everything in at least font 12 in Arial. Try to have less to read in training materials where possible and keep things more interactive/visual.
Although I respect the right for a disabled person to feel how they want to about their own disability, if they want to call it that, no one should be telling you how to feel about your own condition. I see my dyspraxia as both a good and bad thing, but superpower is wholly inappropriate and a bit dismissive of struggles to a lot of people.
What’s everybody having for their tea tonight? My win is having the forethought to come here and ask this in case owt takes my fancy lmfao
Egg fried rice, battered chicken, sweet and sour sauce and spring rolls.
I walked 6 miles with our son in his pram today (its a total weight of about 28kg to push), my knee didn't subluxate once and the pain I have so far isn't much at all.
Every other day, washing too often isn't ideal for eczema sufferers.
I’m an SLP so I’m one of those professionals who I think is doing a poor job at making this clear to parents 😅 as a parent, is there anything specific I could say or something that really got through to you?
I live in the UK, where speech therapy is incredibly minimal, so far we've gotten 2 hours where the focus is more teaching me to be his therapist (NHS might not give him more therapy for months after this) They are very upfront about my 3.5 year old son where they have said this : "we really can't predict which way he'll go, he could speak when he's older in someway or he could be a great AAC/PECs etc user but no one can tell you either way for sure". Hearing it very simply, that communication, however that is, should be the goal rather than speech was very helpful. Seeing therapy as a support, and not ever a cure or a treatment per say.
29, my friend group is people I've known from school since we were 12-16 years old, we still speak almost daily and meet once/twice a year as we all ended up in different parts of the country.
I m afraid there's no way to challenge it, they advise you have to reconfirm every 3 months and give you the date you have to do it next time in the portal. I believe our nursery has to put in a claim termly with the council with all the kids codes by a certain date, so if you miss that i'm not sure how it works to get any funding for the rest of the term. I'd advise checking with nursery ASAP, that if you reapply today you can still be covered for the rest of the summer term.
The parenting subreddit brings me down, and very recently came across the teaching subreddit and I started crying reading some of the posts there.
I couldn't do it until I was 13, and have a dyspraxia diagnosis. I m working on getting a second degree at the moment so not being able to crack a skill like that, never had any baring on my future. They clearly don't get what its like having a child that struggles with skills like that. I hope you managed to find some resources, but if you didn't i'd be more than happy to share what helped me/link you some things?
The UK parenting subreddit is the only one I go near now since it has some specific local things on there, our kids aren't wired for a lot of typical advice so i find it's better to avoid subreddits that believe it works for everyone.
In Scotland (unsure about specifics in rest of UK) I would absolutely go to a pharmacist first: they can give OTC medication and if they say you need to see a GP urgently then that is something you can tell the surgery
Too young for a pharmacy to give more than emollients OTC, if it needs antibiotics due to being infected or steroid cream it needs a prescription from a doctor.
I mean I've put jam in a leftover yorkshire pudding before and i'd do sausages with pancakes, but gravy feels strange for some reason.
Try applying under the NHS low income scheme if you won't meet the automatic UC criteria.
I live in the UK, we had our measles herd immunity taken away by WHO years ago, because our 2 dose rate sits between 85% and 90% each year (where the idiotic Mr Wakefield who caused all this is from) . There was an outbreak in my local area this year, the case rate didn't go above 11 people and were all successfully treated/ experienced no complications, as far as I'm aware all of those infected hadn't been vaccinated . Your immunity should last your baby a year but depending on your area's rules they are usually able to give an extra vaccine sooner and provide preventative antibodies if needed.
Call your HV tommorow, they could just be a bit behind but if your child needs referrals it ll take months perhaps even into years to see someone so it's better to fight the health visitors for referrals now and not need them, than them tell you to wait and see and miss time you could have been waiting for support. If you aren't happy with what the first health visitor says, ask for a different one or speak to your GP (it took me speaking to 3 to get referrals but my gut instinct was right). Any delays they have aren't your fault, all you can really do is fight for that support as early as you can just incase. Also see if your area has a portage service, they could be really helpful with advice and even offers some visits to help.
Follow up to this, does any have any info on Donation if I’m a regular cannabis user?
They have an A-Z list covering pretty much everything but I d think they d say no for being under the influence is a grey area about consenting to it
Asthma attack when I was 4
I m doing health science so my level 3 has worked out as SD329 whilst I finished level 2, then I m doing sk320 and S390 this year and I ll do s350 last next year. I talked them into letting me do the project and defer s350 by saying the following; My project is on something that's barely mentioned in any of the modules anyway I m confident in my research skills including literacy searching through some volunteering I do, so I was already well ahead on that skill Finally I already had one level 3 30 done at pass 2 so even if the project didn't go so well I have a 2:1 almost in the bag. So they conceded and let me do it.
That's really interesting to know, thank you!
Won't be exactly a complete free choice but the topic isn't that restrictive so you can just pick something you are confident in already if the literature is out there. It's more if you feel ready skills wise and if you do you d hopefully be fine
I just noticed the length of the award on your post
I applied when he was 2.5 with suspected autism and he has a severe language delay, so of course 7 months later getting the form again and he doesn't have his autism diagnosis still.
Neither of mine were diagnosed when they were awarded the first time round and my son wasn’t even diagnosed by the second time round .. it’s crazy how long these things can take . My daughter was awarded 2 years without diagnosis at 4 and once she had the diagnosis by the time we renewed she was handed the 5 years . Hopefully you’ll get a longer award this time 🙏🏻🩷
Thank you so much, I just got through to them now and your trick worked ❤️ they gave him middle rate care for 2 years this time, such a relief.
One, we have one, and he's suspected autistic so he needs the best of us that we can give to make sure he has his needs met as best we can.
Does your country have a regulatory body for doctors? If so report them for not following scientific guidelines/ diagnostic criteria properly
Yes. The doctor is licensed and there is a licensing board
The licensing board should have contact details online so you can speak to them.