Your mom's done. I doubt it's solely about the nursing home and that's just the signal that home care was no longer possible because her condition is worsening. The hospital trip, infection, moving, hospice, it's alot. At some point you're done. You can take some solace knowing she is confident and content with her decision. I'd recommend spending your last bit of time avoiding debate about this and just enjoy, reminisce, tell stories about the past and what's going on in your life right now.
I agree for sure. I’ve been doing what I can. I just also can’t believe that she hasn’t passed yet. I know that’s what she wants and she looks miserable now. She can’t connect with people on Facebook or any communication at all.
I'm so sorry. This sounds like my mom's final days, back in April. Mom wouldn't eat at all for the last 10 days or so, and she finally wouldn't take any water, either. Hopefully she's as comfortable as possible with the hospice care. So glad that you are able to spend time with her. There's just no way to care for a pALS without being very physically strong or having all the equipment, and even then, it's draining.
You are so right I am a caregiver for my wife, My kids not around to help and not interested in our condition.My health deteriorate so bad I can’t even describe it
She doesn’t have a home to call her own, she was living with her boyfriend who couldn’t accommodate the things she needed due to space. I’ve been with her every day for the last week, took off of work for it this week because she is really bad. Before this week I was there most of my days off. Her sister and brother have been there, her friends, my dad, and my bother and sister have been there. She has a visitor every day at least for an hour. However, she has been saying for the last year (it’s been a battle) that if she goes to a nursing home she will starve herself. She even told my sister that she started a week prior to her going to the hospital because she knew her old room mate/ex-boyfriend was getting serious. She says it’s not living which I don’t blame her, we just couldn’t of done anything else. Today she shook her head no for her best friend, my sister, and my brother to visit her but only shook her head yes for me.
This sounds so much like my mom. She withheld from drinking and it took 13 days. The best thing was she allowed us to medicate her with morphine and she just slept for the last 11 or 12 days. I'm so sorry. This is such a brutal thing to watch.
My wife passed at home last week in her sleep after a 3 year battle with Bulbar. She was walking, communicating and eating (not enough)on her own until the end. Didn’t want a feeding tube. Death is never the right time for those around you. She and us were lucky that she could still function up to the end. She is at peace now.
Your mom's done. I doubt it's solely about the nursing home and that's just the signal that home care was no longer possible because her condition is worsening. The hospital trip, infection, moving, hospice, it's alot. At some point you're done. You can take some solace knowing she is confident and content with her decision. I'd recommend spending your last bit of time avoiding debate about this and just enjoy, reminisce, tell stories about the past and what's going on in your life right now.
I agree for sure. I’ve been doing what I can. I just also can’t believe that she hasn’t passed yet. I know that’s what she wants and she looks miserable now. She can’t connect with people on Facebook or any communication at all.
I'm so sorry. This sounds like my mom's final days, back in April. Mom wouldn't eat at all for the last 10 days or so, and she finally wouldn't take any water, either. Hopefully she's as comfortable as possible with the hospice care. So glad that you are able to spend time with her. There's just no way to care for a pALS without being very physically strong or having all the equipment, and even then, it's draining.
You are so right I am a caregiver for my wife, My kids not around to help and not interested in our condition.My health deteriorate so bad I can’t even describe it
Big hint. She wants to pass at home with her family.
She doesn’t have a home to call her own, she was living with her boyfriend who couldn’t accommodate the things she needed due to space. I’ve been with her every day for the last week, took off of work for it this week because she is really bad. Before this week I was there most of my days off. Her sister and brother have been there, her friends, my dad, and my bother and sister have been there. She has a visitor every day at least for an hour. However, she has been saying for the last year (it’s been a battle) that if she goes to a nursing home she will starve herself. She even told my sister that she started a week prior to her going to the hospital because she knew her old room mate/ex-boyfriend was getting serious. She says it’s not living which I don’t blame her, we just couldn’t of done anything else. Today she shook her head no for her best friend, my sister, and my brother to visit her but only shook her head yes for me.
Your mom is calling her shot. If I were you, I would do everything you can to spend the most time with her you can because it won’t be long.
That's all so hard. Thinking of you and your mom and hope you can be there with her in the end. Xoxo
This sounds so much like my mom. She withheld from drinking and it took 13 days. The best thing was she allowed us to medicate her with morphine and she just slept for the last 11 or 12 days. I'm so sorry. This is such a brutal thing to watch.
It really is. But today she has become non-responsive and cyanotic. I just really hope she gets her peace tonight
I'm so sorry your mom is in the end stage of this truly awful disease.
I told her that the other day. And my dad (her ex husband) told her to not worry about the kids that he will look after us.
Let her do it. Y’all can’t and we all die. It’s shitty but does prolonging reality help at all? It’s over. She’s done. It’s ok to be done.
I know that it seems like I didn’t let her… I just posted those dates because I couldn’t believe how long it took
Suffering from huge phobia on ALS
My wife passed at home last week in her sleep after a 3 year battle with Bulbar. She was walking, communicating and eating (not enough)on her own until the end. Didn’t want a feeding tube. Death is never the right time for those around you. She and us were lucky that she could still function up to the end. She is at peace now.
My mom is now at peace as well.
I am so sorry. I bet she is so frustrated! Is there anything like MAID where you are?