akelseyreich


























  1. Congrats on being able to go through with surgery so young. It is NOT silly to be afraid of an endometriosis diagnosis. This disease can be debilitating and does not get anywhere near enough funding and research. Most important take away: The pathology will provide the correct diagnosis. Insist on photos being taken as well. I have read way too many stories of people getting laps, not getting pathology results, and being misdiagnosed.

  2. Well… Today started out bad. Like had to sit down to put on pants and yell for my roommate to grab my cane for me type of bad. They took me to my osteopath appointment (so grateful) which helped. Worst morning I’ve had in a while.

  3. Same here on moving items around the B button to exit doesn't work since the update. In order to get rid I have to exit my plot. Hope they fix this issue soon. 

  4. It wasn’t always the case, but the past couple years TV ultrasounds are excruciating for me regardless of how gentle techs are. I now know I have endometriosis which isn’t necessarily the case for you. In short, not normal. It is best to wait for the ultrasound report before jumping to the worst conclusion.

  5. This sounds familiar, but your cyst is more than double the size of mine (which burst at some point—agony). So… not necessarily endometriosis. The cyst could be the culprit. Could be multiple other things. Imaging can’t rule out endometriosis. I had a lap, superficial endometriosis primarily by my sciatic nerve was confirmed.

  6. I haven’t had a hysterectomy, but I do have gender dysphoria. Existing in the endometriosis community triggers mine often with all the women women women focus. A couple days ago I made the official decision to switch from she/they/he to exclusively they/them.

  7. Thank you so much for sharing that. I feel less alone. You’re right. In endo circles it’s so focused on 💕endo girlie!🌸 and I get really frustrated. Not all of us are “girlies”. I feel like I can’t explore my gender dysphoria because it didnt come up organically. It feels manufactured in a way, if that makes sense. Like I didn’t have these issues before surgery but I sure as hell do now.

  8. A hysterectomy is completely changing your hormones potentially. You will likely have a rollercoaster of emotions to deal with for a long time. It’s okay though, it doesn’t matter why you have gender dysphoria. It is valid and many others have had the same experiences.

  9. You should anticipate the report to say, “Everything is normal.” Which in my case means endometriosis. In your case it could mean endometriosis or multiple other possible things. An ultrasound cannot rule out endometriosis. I had 10+ ultrasounds at a hospital. The first time my endometriosis was confirmed was at an endometriosis clinic with a surgeon and technician reviewing the results in real time.

  10. Yep, I relate! I spent years just googling into the void to find resources about women's anger and only found stuff about how to manage it, or how to realize that's it's really another emotion instead (eg: sadness, grief). Nothing on how to experience it and let it move through you! Eventually I found a few things:

  11. Scream in the Park sounds amazing and yet somehow feels so wrong for me to express anger that way. My anger embarrasses me! Emotional conditioning sucks.

  12. Yeah, it felt weird at first, but having a whole group of us made it better and more accessible. Initially I wanted to do it more by myself, but I felt others would be worried by hearing a single woman screaming. After doing it with the group, I'm really glad I did it with others. You should try it if you feel up to it -- I got the idea from the organizer of Women Are Mad because she did it in a park in London.

  13. I started listening to Women are Mad as soon as I saw your recommendation. Thanks for passing it on. I don’t know about screaming, but I did write a long thing about something making me mad which helped some. Plus an ugly cry. And maybe a tirade of swearing…

  14. I have endometriosis and gastritis, I’m using a lot of CBD/THC and hydromorphone. Plus hot/cold pads or baths, started seeing an osteopath… Acupuncture… So many things.

  15. Get a scent free zone sign and steer clear of anyone drenched in scents. If they care about your physical health people will take note. Also… maybe check in with your doctor about the extreme sensitivity to smell just in case.

  16. Prep anything and everything you usually eat that will last at least a week. Especially nutrient dense and easy to eat foods that require little to no additional preparation. Like sliced fruit and veg, smoothies, oatmeal, rice with protein and veggies…

  17. What? Really? I’ve got my lap next week and I didn’t think I had to prep anything. Will I actually not be able to do things for a while? I’ve got three kids and two of them are under 3…

  18. You are having surgery, so yes. Especially if you have extensive endometriosis being removed. Some people need 2-6 months before they feel fully recovered.

  19. Tylenol and Midol is as good as a sugar pill. All the things I’m doing, I’m still in unmanageable pain some days. Here is the list:

  20. The amount of times I’ve been told my bloodwork is perfect while crippled by pain… 🙄 Time to find another doctor which is easier said than done. Gastritis and a hernia 1000% will not show up on bloodwork.

  21. @endowhat is the Instagram account. The link expired weeks ago.

  22. Another excision surgery is what I’m waiting for. I had my first in Nov and am back to presurgery pain levels. The pain is never under control even with doing a long list of symptom management things.

  23. I like to buy a chunk of ginger root. I slice it really thin and put it in the freezer so I can pull it out and put a few pieces in a glass of water whenever I like.

  24. I had to take a deep breath before responding to this… The lack of knowledge doctors have about endometriosis astounds me.

  25. I have some symptom management suggestions. Look in my comments history if I haven’t edited this by the time you read it.

  26. Okay thank you for confirming this, that’s what I was feeling but having a dr be proactive at all was confusing me. I did have an ultra sound and pelvic exam. They found minimal abnormalities, but obviously my dr isn’t an endo specialist so idk what that really means.

  27. For perspective: I’ve had 10+ ultrasounds done at a hospital. The most they found was a cyst and polycystic ovaries. Zero mention of endometriosis. Most reports I receive say absolutely nothing of note, everything is “normal” but I’m in crippling pain.

  28. Absolutely not. Endometriosis can be rather impervious to typical prescription pain killers though, plus my body can’t handle NSAIDs or codeine… Tylenol is as useful as a sugar pill.

  29. ✨Painsomnia.✨ It sucks. I don’t really have suggestions beyond managing your symptoms as per usual.

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